Four and a half years ago Drew and Lauren Pittman’s son, Anders, was born with a rare genetic skin disease called Epidermolysis Bullosa (EB). This condition is characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor friction or trauma and affects the body inside and out. Only around 200 children in the U.S. are born with EB each year, which is why it is called the “worst disease you’ve never heard of.” Children that have EB are called “Butterfly Children” because their skin is as fragile as a butterfly’s wing. There are several variations of severity with this condition ranging from the simplex form to the worst case scenarios, junctional or dystrophic where many of these children don’t survive.
Thankfully, Anders has a mild form of EB, but he does struggle everyday with blisters that his parents have to “pop” with a needle, drain and wrap in a special bandage.
“Everyone knows how painful a blister is, so imagine having them all over your body and sometimes internally. Then imagine, as a parent, knowing that from the day your child was born, they have never gone a second without feeling pain. Then, you will understand why finding a cure is so important to us and all individuals that suffer from this horrific disease.” - Lauren Pittman
This is why Drew and Lauren started the Annual Anders Pittman for a Cure of EB! Please join them and the community for their 3rd Annual Halloween/Costume Cocktail Party on Saturday, October 29th 2016 from 6:00 PM to 11:00 PM. It's an exciting event with live music by the amazingly talented Steven D. Hunt! Sneaki Tiki and D.W. Ashton Catery will be providing their award-winning cuisine! There will be a spooktacular set up of Halloween decorations, open bar, photo bus, live and silent auction and costume contest. The event has a new, more central location this year! It will be held in Downtown Stuart at 200 SW Atlanta Avenue, Stuart, FL 34994.
This is why Drew and Lauren started the Annual Anders Pittman for a Cure of EB! Please join them and the community for their 3rd Annual Halloween/Costume Cocktail Party on Saturday, October 29th 2016 from 6:00 PM to 11:00 PM. It's an exciting event with live music by the amazingly talented Steven D. Hunt! Sneaki Tiki and D.W. Ashton Catery will be providing their award-winning cuisine! There will be a spooktacular set up of Halloween decorations, open bar, photo bus, live and silent auction and costume contest. The event has a new, more central location this year! It will be held in Downtown Stuart at 200 SW Atlanta Avenue, Stuart, FL 34994.
This event is in Anders’ name to find a cure for EB. 100% of the proceeds will go to The EB Research Partnership (EBRP), the largest nonprofit devoted to funding research aimed at treating and curing EB. Over $30,000 was raised for EB with their first two events and they are hoping this year’s event will be even more successful! If you would like to support this wonderful cause, please do so by sponsoring, donating or volunteering to help with the event. Donations for the live and silent auctions are needed as well and would be greatly appreciated!
Please visit www.AndersForEB.com to buy tickets and/or donate. No amount is too small! Advanced tickets are $50 and $75 at the door. This includes: Entry Fee, Beer, Wine, Liquor, Food and Entertainment. For more details, please call Drew and Lauren Pittman at 772-215-1226 or email Lauren@DrewPittman.com. Your contribution/donation is tax deductible to the fullest extent of the law.
